Endometriosis is a chronic condition that significantly impacts daily life, causing pain, psychological distress and productivity loss. Multidisciplinary team (MDT) care is fundamental for managing chronic pain, including in association with endometriosis. However, limited studies have explored MDT care for endometriosis in the Australian context, and there remains a lack of consensus on what a MDT care model should include. This study aims to evaluate patient, carer and health professional perspectives on MDT care for endometriosis and pelvic pain, and generate consensus statements that will help to inform decisions about future MDT clinics in Australia. This research aligns with Priority 2 of the Government’s National Action Plan for Endometriosis.
A mixed-methods study was co-designed by an advisory group of 14 members. Surveys capturing quantitative and qualitative data were disseminated to 75 patients/carers and 55 health professionals/academics across Australia. Data were collected between Mar-Jul 2023. Thematic analysis was performed on qualitative data until saturation was reached, and consensus statements were developed, refined and ranked through focus group reiteration.
The final analysis was informed by 29 healthcare professionals and 24 patients/carers. Qualitative analysis resulted in 5 key themes, including preferences for clinic environments, staff interactions, holistic support, financial accessibility and resource needs. Patients valued empathetic, experienced clinicians and preferred both options for face-to-face and telehealth interactions. Barriers to MDT access included financial strain, highlighting the need for affordable care. Both groups stressed the importance of up-to-date, evidence-based information and personalised care plans.
This study highlights the need for person-centred, holistic and accessible MDT clinics for endometriosis in Australia. In response to the Endometriosis Action Plan, the consensus statements provide a blueprint for developing clinics to enhance endometriosis care quality, improving person experiences and related health outcomes. Future research should focus on evaluating the impact of these recommendations on patient care.